Honoring my dad and standing with families affected by ALS 

Every Story Matters. Every Voice Helps.

ALS (Amyotrophic Lateral Sclerosis), often called Lou Gehrig’s Disease, is a progressive neurodegenerative disease that affects the nerve cells responsible for muscle movement. Over time, people living with ALS may lose the ability to walk, talk, eat, and breathe independently.

While there is currently no cure, awareness, advocacy, research, and support can make a meaningful difference for individuals and families facing this disease.

For my family, ALS is personal.

My dad, Jason Frampton, was a hardworking blue-collar man, a devoted husband, a proud papa, and one of the strongest people I have ever known. Watching ALS gradually take away his physical abilities was heartbreaking, but it never took away his love for his family, his determination, or the impact he had on those around him.

His journey inspired me to become an advocate, share our family’s story, and help other families feel less alone.

Why ALS Awareness Matters

Many people have never heard of ALS until someone they love receives a diagnosis.

Awareness helps:

• Educate communities about the realities of ALS
• Support individuals and caregivers facing the disease
• Encourage funding for research and treatment development
• Connect families with resources and support networks
• Honor those we have lost while fighting for future families

Every conversation, every shared story, and every act of support helps shine a light on ALS.

How You Can Help

Learn

Understanding ALS is the first step toward making a difference.

Helpful resources:

• ALS Association
• I AM ALS
• Your ALS Guide
• Muscular Dystrophy Association (MDA)

These organizations provide education, support, advocacy opportunities, and resources for patients and caregivers.

Share

One of the simplest ways to help is by sharing information and stories.

Talk about ALS with your family and friends.

Share educational resources on social media.

Help spread awareness during ALS Awareness Month and throughout the year.

You never know whose life may be impacted by a conversation.

Advocate

Advocacy plays an important role in improving care, support services, and research funding.

Support legislation that benefits individuals living with ALS.

Contact elected officials regarding ALS-related initiatives.

Participate in awareness events and advocacy campaigns.

Every voice matters.

Support ALS Organizations

Consider supporting organizations that provide direct assistance, advocacy, equipment resources, caregiver support, and research funding.

Your support helps ensure families have access to critical resources throughout their ALS journey.

Donate to The ALS Association 

Donate to I AM ALS 

Donate to Team Gleason 

My Hero With Tired Muscles

After experiencing ALS firsthand through my dad’s journey, I wrote My Hero With Tired Muscles to help children understand serious illness, changing abilities, grief, and the lasting love between family members.

The book was created to help families have difficult conversations with children in a gentle, age-appropriate way while honoring the strength and dignity of those living with ALS.

View the Book

ALS Awareness Merchandise

Our ALS awareness collection was created to honor loved ones, spark conversations, and help keep awareness visible in everyday life.

Every shirt, hoodie, and awareness item helps continue the conversation and supports ongoing awareness efforts.

Shop ALS Merchandise